Support Networks
Here are trusted organizations that provide education, support, and research opportunities for patients and families living with autonomic disorders.
Multiple System Atrophy (MSA) Coalition
A national nonprofit organization that supports people living with MSA.
What they offer:
- Patient and caregiver support
- Educational resources
- Advocacy and awareness
- Funding for MSA research (most donations support research)
- Annual patient and caregiver conference
- Toll‑free support line
Dysautonomia International
A nonprofit focused on improving awareness, research, and care for autonomic disorders.
What they offer:
- Educational materials and expert videos
- Research updates and opportunities
- Patient support and community connections
- Tools to find specialists and support groups
- Annual patient conference and advocacy events
Dysautonomia Information Network (DINET)
A patient-led organization supporting people with conditions like POTS and syncope.
What they offer:
- Educational resources and newsletters
- Online support community
- Physician directory
- Patient and caregiver support programs
The OI Resource
A patient support website focused on orthostatic intolerance and POTS.
What they offer:
- Practical tips for daily management
- Educational materials
- Patient-focused resources and guidance
STARS (Syncope Trust And Reflex Anoxic Seizures)
An international organization focused on fainting (syncope) and related conditions.
What they offer:
- Educational information on different types of syncope
- Patient support resources and materials 24-hour helpline
- Community events and professional education
National Dysautonomia Research Foundation (NDRF)
A nonprofit organization dedicated to supporting individuals with autonomic disorders.
What they offer:
- Patient education and resources
- Physician referral network
- Support for research and awareness
Shy-Drager (MSA) Support Listserv
An online email group connecting patients and families living with MSA.
What it offers:
- Peer support and shared experiences
- Ongoing communication with others facing similar challenges