SJS/TEN Meetings

Dear Friends and Colleagues,

A heartfelt thank you for participating in our biennial SJS/TEN meeting SJS/TEN2023: Bringing Science to Allheld virtually on August 26 and 27, 2023. This meeting brought together interdisciplinary scientists and clinicians, students, representatives of government/regulatory agencies, non-profit leaders, patients, and family members.

Highlights from the 2023 meeting: 

During the opening day welcome message led by meeting chairs Drs. Elizabeth Phillips, Haji Saeed, and Robert Micheletti, we watched a trailer for the documentary "Louis Chaix, A Journey With Purpose," which can still be viewed here. This documentary, the full version of which will be released in the Spring of 2024, details every moment in the exciting journey of TEN survivor Louis Chaix, who set a national record in his journey rollerblading across the United States from Venice, California, to New York, New York. 

The meeting launched with community-focused concurrent breakout sessions hosted by faculty and community members. In addition, an informative session on grant writing and funding opportunities was led by three NIH institutes (NIAMS, NCATS, and NIAID) and aimed at early career scientists.

SJS/TEN 2023 also included:

• A workshop highlighting the progress and challenges of using several diverse laboratory, informatic, and imaging tools for genetic screening, diagnosis, and drug causality assessment 
• Oral abstract and poster presentations from early investigators 
• A pro-con debate on SJS/TEN treatment 
• A roadmap for recognizing diverse presentations of SJS/TEN and mimickers across different skin tones and pigmentations 
• A session on SJS/TEN and reactive infectious mucocutaneous eruption (RIME) in children 
• A presentation on the global perspective with SJS/TEN in HIV and TB co-infected patients.

Recordings of all sessions from SJS/TEN 2023 can be viewed in the 2023 "Meeting videos" section below. To download the complete meeting program, please click here.  

Warm regards,  

Drs. Elizabeth Phillips, Haji Saeed, and Robert Micheletti 
SJS/TEN 2023 Meeting Chairs

Watch the SJS/TEN 2023 meeting videos on the playlist below.

Dear Friends and Colleagues,    

Thank you for participating in SJSTEN 2021, Collaboration, Innovation, and Community, which was successfully held as a virtual meeting on August 28 and 29, 2021. This third biennial SJS/TEN meeting drew physician-scientists and the larger SJS community together for the latest information on predicting, diagnosing, and treating SJS/TEN.

A white paper was written from the information generated at this meeting. It provides an updated analysis of current research and clinical priorities for SJS/TEN and details the next steps for moving the field forward. (Marks M, Botta R, Abe R, Beachkofsky T, et al. Updates in SJS/TEN: collaboration, innovation, and community. Front. Med. 2023;10:1-21. doi: 10.3389/fmed.2023.1213889. PMID: 37901413; PMCID: PMC10600400.)

Highlights from the meeting:  
There was a tribute to the late Dr. Jean-Claude Roujeau, who passed away in 2021. He was a true pioneer in SJS/TEN research and clinical care. Early investigators gained the opportunity to deliver poster and oral presentations and to learn about NIH funding and priorities for research. In addition, there was a workshop dedicated to SJS survivors, family members, and the larger SJS community.

SJS/TEN 2021 also included:

• A pharmacogenomics workshop
• A poster discussion session for trainees
• Over 25 keynote sessions on cutting-edge topics related to SJS/TEN
• Panel discussions
• Feature sessions on NIH funding, grants, and publishing

Recordings of all the sessions can be viewed below. To download the complete meeting program, please click here.

Many thanks,  

Drs. Elizabeth Phillips, Sherrie Divito, and Charles Bouchard 
SJS/TEN 2021 Meeting Chairs

Dear Friends and Colleagues,

Thank you for attending our biennial SJS/TEN meeting SJS/TEN 2019: From Science to Translation, held April 26-27, 2019 in Vancouver, Canada. The conference successfully engaged clinicians, researchers, and patients and facilitated many productive discussions on research and patient care needs. It was built upon the outcomes and successes of a 2015 workshop and the inaugural SJS/TEN 2017. It facilitated the continued growth of a multidisciplinary interactive network of researchers and ongoing collaboration among SJS/TEN survivors, their families, and support groups.

A white paper was written to summarize cutting-edge research and treatment presentations given at SJS/TEN 2019. It defines strategies for multidisciplinary collaboration to address critical research gaps and improve SJS/TEN outcomes. (Chang WC, Abe, R, Anderson, P, Anderson W, et al. SJS/TEN 2019: From science to translation. J. Dermatol. Sci. 2020;98(1), 2-12. doi: 10.1016/j.jdermsci.2020.02.003. PMID: 32192826; PMCID: PMC7261636.)

Highlights from the meeting: 

An opening plenary from Neil H. Shear, MD, provided a thoughtful perspective on the past, present, and future of the SJS/TEN research. In addition, a pharmacogenomics panel of diverse stakeholders from six countries covered a wide range of topics. It stated that regulations to facilitate the routine clinical use of pharmacogenomics should follow evidence-based science and involve diverse groups in these decisions. Nine representatives from regional or international networks and registries focused on studies associated with severe immune-mediated adverse reactions and shared recent progress in the field of SJS/TEN.

SJS/TEN 2019 also included: 

• A session on utilizing the electronic health record to find and study SJS/TEN cases to increase knowledge on the epidemiology, causative drugs, predictors, and sequelae of SJS/TEN 
• A presentation on genomic approaches for predicting, preventing, and treating SJS/TEN.
• Updates in ocular science pertinent to clinical care for affected patients. 
• A discussion on the challenges and opportunities for managing the disease in patients with multiple morbidities. 
• Patient and family stories that were shared to raise awareness of SJS/TEN and advocate for new research.

Recordings of all sessions from SJS/TEN 2019 are available through clicking on the videos listed below.  

Many thanks,

Drs. Elizabeth Phillips, Wen-Hung Chung, and Bruce Carleton

SJS/TEN 2019 Meeting Chairs